COVID-19 resources for health care providers and caregivers

Selected materials that help you to support the health and well-being of people with intellectual and developmental disabilities during the COVID-19 pandemic.

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COVID-19 vaccines

  • COVID-19 vaccines: Getting set to go. A webinar recording that includes many tips for caregivers on how to prepare and create a positive vaccination experience for people with intellectual and developmental disabilities.

Talking about COVID-19

  • Easy Read accessible documents on COVID-19, consistent with Public Health Ontario guidance as well as the Ontario COVID-19 website. These information sheets have been adapted by H-CARDD with permission from Opening Doors UK. Available in English and French at H-CARDD COVID website are:
    • What is Coronavirus?
    • How to stay safe: Physical Distancing
    • How to stay safe: Handwashing
    • Stay in, Stay well
    • If you get sick
  • Books Beyond Words, UK published a series of wordless stories around COVID-19 that help you facilitate a conversation with a person with IDD, including:
    • Beating the virus: A short wordless story, that will help people to understand what to do if you have Coronavirus and how to keep yourself and those who you care about safe. The story also shows how to safely help others who may be self-isolating. Supplementary text at the end of the story gives information on where people can seek help if they are unwell and signposts to other useful resources.

Planning COVID-19 medical care

COVID advance care planning

Accommodations and communication

  • The COVID-19 Hospital Transfer Form, by the Primary Care Program, Surrey Place (in English and French). Designed for family and other caregivers of adults with intellectual and developmental disabilities. In the event of a hospital admission for COVID-19, this form communicates essential information to hospital staff, including medical information, substitute decision-maker contacts and information about support needs.
  • Communication rights toolkit, by Communication Disabilities Access Canada. Patients with COVID-19 (coronavirus) who need communication tools and supports due to speech-related disabilities face greater risks of discrimination and isolation during this pandemic. This toolkit includes an accommodation request form that patients can bring to the hospital.

Social stories

Health care decision making

Mental health

  • H-CARDD COVID, a website with resources and many tips about good mental health for adults with IDD during the pandemic https://www.hcarddcovid.com/info
  • COVID-19 Self-help Booklet Series, CAMH, Toronto. The Self-help Booklet Series is for people with intellectual disabilities and can be used with the support of family members, friends, staff, and health care professionals. There is a how-to guide accompanying each booklet. The booklets are intended to give people with intellectual disabilities an opportunity to talk through their feelings and make plans for staying well at this difficult time.

COVID-19 testing

Bereavement

Safeguarding

  • When it’s not safe to stay at home, by Beyond Words, UK. An illustrated guide to supporting people at risk of abuse at home during coronavirus. Includes information on recognizing domestic abuse and sources of support.
  • In Ontario: ReportON is a telephone line and email address to report actual or suspected abuse or neglect of adults with intellectual or developmental disability.

Routine primary care during COVID-19

Continue to promote healthcare visits for non-COVID care with a person’s family doctor. Share a video to explain virtual care:

Use patient engagement tools that facilitate the online healthcare visit:

  • About My Health, Developmental Disabilities Primary Care Program, Surrey Place
  • My Health Care Visit, Developmental Disabilities Primary Care Program, Surrey Place
    *These tools will soon be available as e-forms on the Ocean patient engagement platform by CognisantMD. Contact us for more information.