About Developmental Disabilities Primary Care Program

The Developmental Disabilities Primary Care Program is a program of Surrey Place, Toronto. Surrey Place provides specialized clinical services to children and adults with intellectual and developmental disabilities in the Toronto Region. Surrey Place is affiliated with the University of Toronto and other academic institutions and is a teaching site for students in a variety of health care professions.

Vision

Adults with intellectual and developmental disabilities have a right to primary care that meets their specific health and developmental needs.

Mission

To develop standards of care, resources and partnerships to improve the primary health care for adults with intellectual and developmental disabilities.

What we do

The Developmental Disabilities Primary Care Program

  • Provides leadership in promoting primary care of people with intellectual and developmental disabilities by identifying areas of priority, healthcare standards and service goals.
  • Develops, publishes and promotes clinical practice guidelines for primary care that are informed by ethics, empirical studies, expert knowledge, current research on health care systems and other contexts of care, and perspectives and experiences of people with intellectual and developmental disabilities and their caregivers.
  • Curates and develops education materials, tools and resources for health care providers to help them implement the guidelines.
  • Serves as a resource to primary care providers regarding health care of people with intellectual and developmental disabilities.
  • Develops and supports strategic partnerships with relevant organizations to improve the health and well-being of adults with intellectual and developmental disabilities.

The Developmental Disabilities Primary Care Program is funded and supported by the Ontario Ministry of Health and Long-Term Care, the Ontario Ministry of Children, Community and Social Services, and Surrey Place, Toronto, Canada.

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Dr. William Sullivan

Program Director

[ultimate_modal modal_title=”About Dr. William Sullivan” btn_bg_color=”#004983″ btn_text=”Read Biography” overlay_bg_opacity=”80″ img_size=”80″ css_modal_box=”.vc_custom_1523060943063{margin-top: -50px !important;}”]Dr. William Sullivan (CCFP (COE), FCFP, PhD) is an Associate Professor in the Department of Family and Community Medicine, University of Toronto. He has a certificate of added competency in Care of the Elderly from the College of Family Physicians of Canada, in which he is also a Fellow. He is the founding director of the Developmental Disabilities Primary Care Program. Dr. Sullivan works as a family physician in Medical Services at Surrey Place (Toronto). In this capacity, he provides primary care assessments of adults with intellectual and developmental disabilities and consults to their family physicians and other healthcare and developmental services providers. He also has a teaching practice in the Academic Family Health Team at St. Michael’s Hospital, Toronto.[/ultimate_modal]

Andrea Perry

Transitions Facilitator

[ultimate_modal modal_title=”About Andrea Perry” btn_bg_color=”#004983″ btn_text=”Read Biography” overlay_bg_opacity=”80″ img_size=”80″ css_modal_box=”.vc_custom_1543336373849{margin-top: -50px !important;margin-bottom: 150px !important;}”]Andrea’s work at the Developmental Disabilities Primary Care Program focuses on transition issues for people with intellectual and developmental disabilities and their caregivers, who are aging and facing later-life health and social challenges. Andrea informs this work through clinical involvement as an occupational therapist with Surrey Place’s inter-professional Plus 45 Clinic, which assesses and supports people experiencing functional decline or showing signs of dementia. Prior to joining Surrey Place, she worked at Baycrest and Toronto Western Hospital, under the Behaviour Supports Ontario umbrella supporting people with responsive behaviours secondary to dementia or mental health concerns. Andrea has also had the good fortune of working with primary care providers through the Health Care Access Research and Developmental Disabilities (H-CARDD) program at the Centre for Addiction and Mental Health, Toronto, and as an occupational therapist in both community mental health and forensic settings, where many clients were individuals with dual diagnoses. Andrea has a special interest in novel approaches that enhance quality of life for people and their caregivers entering the later, or end stages of life.[/ultimate_modal]

Megan Henze

Transitions Facilitator

[ultimate_modal modal_title=”About Megan Henze” btn_bg_color=”#004983″ btn_text=”Read Biography” overlay_bg_opacity=”80″ img_size=”80″ css_modal_box=”.vc_custom_1543336384735{margin-top: -50px !important;}”]Megan Henze is an occupational therapist with experience working with adolescents and young adults with disabilities as they transition into adulthood. At the Developmental Disabilities Primary Care Program, Megan collaborates with experts at St. Michael’s Hospital (Toronto) to establish a transition clinic with a focus on transition-aged youth with intellectual and developmental disabilities. She previously worked in the Good 2 Go Transition Program at the Hospital for Sick Children, Toronto. Her work in Good 2 Go focused on assisting patients and families with the development of self-management skills and transition planning for healthcare, funding, services, employment and housing. Megan has a special interest in factors that assist adults with disabilities to live in community-based settings with rather than institutional settings.[/ultimate_modal]
Heidi Diepstra

Dr. Heidi Diepstra

Research Associate

[ultimate_modal modal_title=”About Heidi Diepstra” btn_bg_color=”#004983″ btn_text=”Read Biography” overlay_bg_opacity=”80″ img_size=”80″ css_modal_box=”.vc_custom_1525095828913{margin-top: -50px !important;}”]Heidi Diepstra (MA, PhD) has a clinical and research background in speech and language pathology. Originally, from the Netherlands, she moved to Canada to pursue her doctoral degree at the University of Toronto. Her research work in speech and language pathology focused on the motor aspects of speech development in infants from a dynamical systems perspective. She has an interest in complex systems theory and its application to human development and health care. Heidi is also a certified Knowledge Translation professional and has led a variety of communication strategies for the Health Care Access and Developmental Disabilities Research (H-CARDD) program at the Centre for Addiction and Mental Health in Toronto. Heidi has found a happy place between research and practice at the Developmental Disabilities Primary Care Program where she is leading research, evaluation, and knowledge translation and exchange projects. She believes everyone has a right to good health care and is dedicated to bridging the gap between research evidence and practice to improve the health and wellbeing of people with developmental disabilities.[/ultimate_modal]