Advance Care Planning
A guide for caregivers of adults with intellectual and developmental disabilities
This tool guides caregivers of adults with intellectual and developmental disabilities (IDD) through the process of advance care planning regarding possible medical treatments. Advance care planning is a process that promotes person-centred care of patients by clarifying their present goals and values, and their preferences for future health care. For adults with IDD, this process involves the adult’s substitute decision maker, a healthcare provider, and others who know the adult well, whom the adult trusts, and who are willing to support this process.